One of the absolute rules of controlling this disease is getting enough uninterrupted sleep. That would be great, but one of the grandbabies is still getting up every three hours at night! He is now ten months old! Why is he doing this? He wakes up crying, drinks a few ounces of his bottle, and then is right back to sleep. He's usually never awake longer than ten minutes or so, but not so for me! We usually take him one night a week so his poor parents can have a break, but it's wearing me down! He had been sleeping six straight hours, then about three months ago, started with this waking up constantly. Ugh.
Anyway, back to the Plaquenil. I haven't decided for sure whether to take it or not. I've been praying about it. My newest rheumatologist wants me to give it a three month trial. If it doesn't help by then (suppose to take 4-6 weeks to become effective), then I can just stop taking it. In the meantime, I need a baseline eye eval before starting it. So I called a highly recommended opthamologist this morning. Yea, they can see me in February! Okaaay. February it is.
So, I've been asking God to give me a sign on whether I should take this potentially eyesight robbing medication. I woke up yesterday morning with every muscle screaming. Much more than usual. Of course, we babysat our granddoggy for the weekend, which could have been part of the problem. She is very adorable, but our two kitties hate her. Do you think she would leave them alone? No. All weekend hubby & I were refereeing. No Cali, no Talle, no Charlotte! I'm sure it was confusing to Cali, the pup, and Talle, our big boy kitty, as to who we were reprimanding, as their names sound the same. Then, Cali has to sleep in bed with us, under the covers, at the foot of the bed. I was scared to death she was going to suffocate down there! The first night, Friday, the kitties parked themselves outside our bedroom door. Cali knew they were there, and did nothing but whine and jump off the bed every five seconds! Then she couldn't get back up, so I would have to bend over and try to pick her up, but then she would run out of my reach, so I'd have to get out of bed to get her. By 1am I was losing it. I yelled at the top of my lungs, "ENOUGH!!!" Cali ran right under the covers and stayed there all night. ;) Whatever works!
|Cali Christmas 2012|
Cali was much better Saturday night. Sunday, we picked up the non-full night sleeping grandson, to keep him overnight. Normally I go to my son & DIL's on Monday morning to babysit, but my car decided to have battery problems, so is in the shop. Our grandson, Gavin, is an absolute cutie pie, and we love him to pieces. He can now pull himself up on furniture, and loves exploring. He slept a whole 4 straight hours Sunday night! Yay. Not. For some reason he was wound up, probably from the kitty/doggie antics, as Cali's mommy, my daughter, did not pick her up until around 8pm on Sunday. She is in the process of moving, so hence us doggie-sitting this weekend. Gavin didn't fall asleep until about 10:30pm, then up at 2:30am to 2:40, back up again from 4-4:15, then up at 5:30-5:45, and then slept till about 7:45. Gee, I wonder why I was in so much pain yesterday morning. At least he took a good 3 hour nap in the afternoon.
|Gavin practicing standing|
|Cutie pie Gavin. Stupid cell phone focused on the background and|
not his face. My son taught me how to focus though, for future photos!
I know he probably shouldn't be getting a bottle when he wakes up during the night, but that's what his mommy does for him at home. I know he probably has separation anxiety, and needs to learn to sooth himself back to sleep, but he doesn't suck his thumb, or use a pacifer, or a wubbie/blankie. He is also very high energy. Anyone have any suggestions?
Gavin was a pleasure all day long yesterday. We brought him home around 5, after hubby got home, so he could drive us over. My pain eased up during the day, but of course, I was popping Ibuprofen. I try not to take more than 1200mg/day, and always with food. My usual dose is around 800mg, but yesterday was definitely a 1200mg day!
This morning I woke up with my knees killing me. It is so frustrating because I can not crouch, or bend them or kneel. I went to get my sneakers out of my closet, and noticed my shoes were completely strewn about! Hmmm, who could have done this, I wonder. Maybe a tiny little doggie with hyperactivity? So, being that I'm a little OCD, and HAD to straighten out this closet right now! It is not an easy thing when you have to bend over from the waist, using a flashlight to see into this dark closet, to straighten out 20 pairs of assorted crocs & flip flops, I'll have you know. My husband kept saying, leave it alone, I'll do it when I get home, as he hears me grumbling (and maybe a swear or two) under my breath. I appreciate the offer of help I say, but how can he possibly arrange my shoes the way I want them???
So, after staightening out the shoe mess, I head downstairs. Every step, ouch, ow, owchie, ?#F@__$@! My knees! I did have a left knee meniscus tear, which was repaired a few months ago, but this pain is different than that. Then I think to myself, maybe this is the sign I've been asking God for. I also feel extremely tired this morning, which is also a sympton of this disease, and which the Plaquenil is suppose to help with. I did get a full 8 hours of sleep last night, so I shouldn't be tired. I don't know.
So I b....ched for a while longer, then stopped. Whenever I start complaining about my life, I stop and think about Tripp Halstead, a sweet little three year old who was born perfectly healthy, and then had a trip limb fall on his head at daycare a year ago, leaving him virtually a shell of himself. He is improving, but slowly. Here is his story if you're so inclined. TeamBoom4Trip & his Facebook page. Believe me, when you read about what he and his parents, and family went through and are still going through, you'll thank God for your problems, as I do.